SKU: 44267737565

Leben mit dem Ullrich-Turner-Syndrom

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Leben mit dem Ullrich-Turner-SyndromDiagnose Ullrich Turner Syndrom: Damit stehen pltzlich viele Fragen fr betroffene Eltern, Mdchen und Frauen im Raum. Auch rzte und Fachleute haben nicht immer ausreichende und befriedigende Antworten. Vom Ullrich Turner Syndrom sind ausschlielich Frauen betroffen. Bei ihnen ist das zweite der beiden X Chromosomen verndert oder es fehlt, daher gehren zu den Hauptsymptomen i. d. R. Kleinwuchs und das Ausbleiben einer spontanen Puberttsentwicklung. Die

Diagnose Ullrich-Turner-Syndrom: Damit stehen plötzlich viele Fragen für betroffene Eltern, Mädchen und Frauen im Raum. Auch Ärzte und Fachleute haben nicht immer ausreichende und befriedigende Antworten. Vom Ullrich-Turner-Syndrom sind ausschließlich Frauen betroffen. Bei ihnen ist das zweite der beiden X-Chromosomen verändert oder es fehlt, daher gehören zu den Hauptsymptomen i.d.R. Kleinwuchs und das Ausbleiben einer spontanen Pubertätsentwicklung. Die Autorin ist selbst eine Betroffene: Sie zeichnet ein lebendiges Bild ihres Alltags und gewährt Einblick in ihre Gedanken und Gefühle. Außerdem berät sie seit mehreren Jahren Mädchen und Frauen mit dem Ullrich-Turner-Syndrom. Unter anderem gibt das Buch auf folgende Fragen Antworten: ? Was ist denn bei einer Frau mit UTS anders? ? Welche typischen Entwicklungsprobleme treten in der Pubertät auf? ? Ist für mich ein selbstständiges Leben in einer eigenen Partnerschaft möglich? ? Wohin kann ich mich mit Fragen und Schwierigkeiten wenden? Die Autorin macht auf sehr einfühlsame Weise anderen Betroffenen Mut und räumt viele Vorurteile aus, ohne dabei problematische Bereiche auszuklammern. Mit grundlegenden medizinischen Informationen, Kontaktadressen und hilfreichen Literaturhinweisen. Aus dem Inhalt Ullrich-Turner-Syndrom -- was ist das? Informationen über Symptome, Therapie und Besonderheiten Erfahrungen einer Betroffenen im Alltag und in Bezug auf die Therapie: in der Kindheit -- als Jugendliche -- als junge Erwachsene Wünsche einer Betroffenen Wann ist ein Mensch ein Mens AUTOR: Angelika Bock, Diplom-Psychologin, Rehaklinik Usedom, Heringsdorf, betreut ehrenamtlich das Informations- und Beratungstelefon der Turner-Syndrom-Vereinigung Deutschland e.V. Sie war mehrere Jahre Vorsitzende dieser Selbsthilfeorganisation.

EAN: 9783497016181
Farbverschnitt: Generell werden die Bücher ohne Farbverschnitt geliefert, auch wenn die Abbildungen einen Farbverschnitt zeigen.
Erscheinungsjahr: 2002
Produktform: Kartoniert
Autoren: Bock, Angelika
Kommentar: Süssmuth, Rita~Müller-Seelig, Elke
Seitenzahl/Blattzahl: 102
Keyword: Turner; Turner-Syndrom; Ullrich; Ullrich-Turner-Syndrom
Fachschema: Frau / Medizin, Biologie, Gesundheit~Behindertenpädagogik (Heilpädagogik)~Heilpädagogik~Pädagoge / Heilpädagoge~Pädagogik / Heilpädagogik
Fachkategorie: Komplementäre Therapien, Heilverfahren und Gesundheit~Sonderpädagogik, Frauengesundheit
Thema: Optimieren, Verstehen
Text Sprache: ger
Verlag: Reinhardt Ernst, Ernst Reinhardt Verlag
Länge: 187 mm
Breite: 126 mm
Höhe: 9 mm
Gewicht: 122 gr
Genre: Sozialwissenschaften/Recht/Wirtschaft
Herkunftsland: DEUTSCHLAND (DE)
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SKU: 44267737565

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4.4 ★★★★★
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Jewell Urbano
Fort Morgan, US
★★★★★ 5
Wow.
Format: Kindle
Okay I’m usually not one for stand-alone’s I’m an avid series reader but my goodness am I so happy I read this! This story was brilliant & so absolutely mesmerizing. I loved reading about each character and their struggles as well as what helped them to move forward. The ending definitely brought tears to my eyes so hard. I truly wasn’t expecting some of what happened in this story. There is about to be a spoiler I am going to reveal so please stop reading if you don’t want the spoiler !!!! ⚠️ ⛔️ ‼️ I loved that the author didn’t do what most authors do with irredeemable male characters. I truly was hoping that Nate Jr. would be apart of the pack after the way he treated Astrea bc he truly didn’t deserve it. Though I must say you did a wonderful job or redeeming him as a person. I cried my eyes out when he walked into the story. I was truly terrified he was going to be a bad guy to the end. However you truly did him such a justice by having him realize his faults & having him redeem himself in the most wonderful way. I’m so sad that he didn’t get to hear how much his brother loved him & forgave him before dying. But again you wrote that ending so beautifully & I just can’t express how much I loved this story & how you took a different route than most authors I have read have. You are a remarkable author Cinder Blaze & I thank you generously for creating such a masterpiece.
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Reviewed in the United States on April 28, 2025
K
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Kristen Linscott
San Leandro, US
★★★★★ 4
Omegaverse
Format: Kindle
I was pleasantly surprised by this omega verse book. This 1 definitely had a few new twists And I really enjoyed reading it. The main female character was a badass and awesome. She had 1 best friend I wish we could have seen a little bit more of their friendship in this book. Her relationship with the male characters was good not to contrived or super instantaneous. And we had some fun plot twists that I didn't expect. I wish we had more of a follow up on the situation with her family her background and her mother who was a wench. I would definitely recommend this book.
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Reviewed in the United States on April 9, 2025
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Amanda
Birmingham, US
★★★★★ 5
Wow. Just wow. An amazing read
Format: Kindle
This book was eloquently written, or should I say the authors writing style is very eloquent? I loved the characters, and the story was quite compelling. I absolutely loved the FMC, she's a BA who doesn't take any crap & gives as good as she gets. A certain person certainly got his just desserts & then some, the earlier scenes of which were quite satisfying, had me punching the air & everything haha. All in all 20/10, great read
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Reviewed in the United States on November 29, 2024
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Lauren
Whiting, US
★★★★★ 3
My opinion
Format: Kindle
Let me preface this by saying I really liked the story and the characters however, this book is in desperate need of some sort of editing. It's not misspelled words or formatting, but continuous run on sentences. Redundancies within the sentences. There were a couple of paragraphs that I had to go back and reread 3 or 4 times. Overall, I'd say it was worth the read.
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Reviewed in the United States on May 29, 2025
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Amazon Customer
Chelsea, US
★★★★★ 5
Beautiful
Format: Kindle
I love omegaverses I had looked at this one multiple times thinking it's just another book about cocky rock star guys that let fame get to their heads and there are parts like that so I wasn't 100% off. I started reading the second book and met the fmc Astraea from the first one,after she had a run in with the aphla from the gym.😁 it gave me the push to stop and read book one first and im so glad I did this book was amazing their was so many characters I fell in love with hoping they will find their happily ever after. the guys were great, the plot was 🎯, and the ending had me 😭😭😭. I was wondering how nate could ever redeem himself, and he did. the last scene with him was sad, but I also felt it was beautiful. thank you to the author for making a beautiful omegaverse book that gave me all the feels. now I'm jumping straight into book two.
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Reviewed in the United States on March 25, 2025

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